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work for rare voices australia

Policy & Research Officer

Location: Flexible. Current staff work from home offices. The successful applicant may be based in or near any Australian capital city or major 

regional centre.
Hours: Part time position (0.8). Flexible office hours, with occasional overtime work required. 

Some interstate travel will be required.
Length of Role: 12 month fixed term contract with the potential for renewal.

Salary: $80K per annum full time equivalent pro rata, plus super
Benefits: Not for Profit Salary Packaging Benefits which reduces your taxable income
Contact email: 


About the Role

Policy & Research Officer Responsibilities:

• Work with staff to lead the development and writing of the National Strategic Action Plan for Rare Diseases for submission to the Government. 

• Seek input from a wide range of stakeholders through internal and external channels, including patients and carers, clinicians, researchers, policy-makers, governments and industry.

• In consultation with staff and stakeholders, develop policy submissions and position statements relevant to RVA’s scope of work and its Call for a comprehensive National Rare Disease Policy Framework.

• Develop and maintain effective working relationships with key stakeholders around rare disease research and policy development.

• Contribute in a collaborative team to key RVA projects and events such as the biannual Summit and networking/educations events that provides an opportunity for collaboration between RVA and patient group stakeholders.

• Manage all RVA policy documentation to ensure maximum engagement with the key purpose and strategic objectives of RVA.

• Contribute to a positive and effective team focused on improving the lives of Australians living with a rare disease

 Key Selection Criteria:

1. Proven experience in a similar role
2. Appropriate qualifications suited to this role (public health, public or social policy)
3. Ability to facilitate groups and synthesise key messages
4. Commitment to improving the lives of Australians living with a rare disease.
5. Understanding of the RD or health sector.
6. Exceptional communication skills both written and oral. Demonstrated ability to produce high quality policy papers and reports.

7. Collaborative and inclusive approach to working with others.
8. Relationship building skills.
9. Organised, detailed and able to manage priorities to deliver outcomes.
10. Fits the culture and values of the organisation: respect and care for others, supporting people to succeed, recognising and valuing different strengths and capabilities of team members, collaboration and co-operation, patient centric approach in decision making


  •  Other Relevant Information:  
    - The appointee will be subject to a probation period of three months.
    - The position may be subject to a National Police Records Check.
    - Applications must be an Australian Citizen, Permanent Resident or hold a valid work permit or visa.
    - RVA is an equal opportunity employer and welcomes applicants from a diverse range of backgrounds.


    How to Apply
    Forward your application addressing the Selection Criteria, as well as a copy of your CV to:  

    Nicole Millis, Chief Executive Officer, by 31st January 2019

    Email: nicole.millis@rarevoices.com.au
    Phone: 0459 021 204