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What We Do

RVA is Australia's national rare disease alliance supporting all those who live with a rare disease.  RVA provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare diseases.  RVA works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare diseases in Australia. We are the voice of all Australians affected by rare diseases.


RVA aims to provide the following services:

•      Providing leadership and advocacy on national rare disease issues for the benefit of those who live with a rare disease.
•      Raise awareness of issues faced by the rare disease community to promote understanding, motivation and empowerment.
•      Educating physicians and other healthcare professionals about rare diseases to promote early diagnosis and optimal treatment.
•      Collaborate and connect with all Australians sharing the experience of living with a rare disease.