Dialog Box


RVA's Purpose & Funding

Rare Voices Australia (RVA) is Australia's non-profit, national peak organisation advocating for all who live with rare disease. RVA provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare diseases. Patient-centred, RVA works with all stakeholders including patients, key peak bodies, governments, researchers, clinicians and industry to promote rare disease research, diagnosis, treatment and services.


Rare Diseases are not formally or officially recognised by the Australian Government and there is no Australian rare disease policy in place. The data collected on rare diseases is based on international conservative estimates of 6-8% of the total Australian population. 


Rare Voices Australia (RVA) was established in response to the consensus call from over 200 national attendees at the inaugural ʻAwakening Australia to Rare Diseasesʼ international symposium held in Fremantle, Western Australia, in 2011. Read more about the outcomes of the WA 2011 symposium.


RVA's Funding

RVA is a registered Company Limited by Guarantee and operates under a membership model. RVA is reliant on grants, donations and project funding. The membership comprises of Not for Profit Patient Organisations, Individuals and Companies (Round Table of Companies).  


RVA also relies on the fundraising efforts of its members, donations of its supporters, grants and project funds from sponsors.


RVA is grateful to all its members, contributors and sponsors.


The Logo


RVA in partnership with the Loft Group Creative Agency developed the new visual identity for the organization. Careful consideration has been given to creating a logo that encapsulates the story of the Rare Disease Community. Ideas of working together as one whilst respecting individuality; and creating movement and positive change out of diversity and challenge were paramount. We hope you like it.


The V Formation

The strongest bird is typically the first bird or the one to provide the primary support for the flock in motion by flying on the tips, producing lifting of the others. By flying as a team in this formation, each bird receives assistance in supporting its own weight in flight. The birds flying at the tip of the formation are rotated to reduce fatigue and allow the weaker birds to gain strength over time. The birds learn and grow as part of the team. The V formation also allows easier communication as the birds keep sight of each other.


The Fingerprint Texture

This idea was one of the strongest of the initial concepts, as it represents the individuality of the people themselves, as well as the many different rare conditions, all connected through Rare Voices. Each person has their own personal story, their own unique journey which they can share with the community as a whole.


Colour Scheme

The warm ochre colour palette represents the Australian community and the distinctive landscape which nurtures it. It also suggests optimism, strength and energy.