Rare Disease Summit Communique
The Rare Voices Australia Rare Disease Summit (27-28 March 2016) reviewed a Draft Communique which lists the key principles and objectives of a National Rare Disease Plan.
The signed Communique features the logos of ALL those organisations that formally endorse the National Rare Disease Plan. This was used to support RVA to advocate for a National Rare Disease Plan. The RVA Rare Disease Summit was informed by key findings from RVA’s 2014 National Roadshow on rare diseases. The “RVA National Roadshow Summary” document outlines these findings, and the principles and objectives to progress a national plan for rare diseases. Please click here to download the document.
See below those individuals and organisations that showed their support for the Communique.
Communique Supporters List Signatures