'Fair for Rare' Campaign
Rare Voices Australia is advocating for people
living with a rare disease to have equal access to safe, effective treatments
and healthcare management in a coordinated and adequately resourced approach
throughout the country.
The ‘Fair for Rare’ Campaign enables people
living with a rare disease to share their journey of living with their
particular rare disease and to highlight the opportunities for us as a country
to do better, and give them a ‘Fair go’.
The ‘Fair for Rare’ campaign aims to generate
greater awareness for rare diseases in Australia and strengthen the common
voice of people living with a rare disease.
‘Fair for Rare’ will address rare diseases as a national challenge and
promote as a national public health priority.
We know that the rare disease community extends
beyond that of the patient and it is this groundswell support that is needed to
achieve change; to achieve ‘Fair for Rare’.
The campaign is being steered by an
enthusiastic and committed Working Group who have already done much work on
refining the campaign logo and campaign activities. The rare disease community
will be encouraged to participate in the ‘Fair for Rare’ campaign – in a range
of ways eg social media, Fair for Rare events, lobbying politicians. There will
be many ways you can be involved – stay tuned!