Dialog Box




Summit Overview

This year's summit was a fantastic success, bringing together key people in the community to discuss and identify trends to help manage and combat Rare Diseases. 


Overview Materials

Following this year's event, a selection of key materials is now available for download.




The Summit reviewed a Draft Communique, which lists the key principles and objectives of a National Rare Disease Plan. RVA invites every organisation to formally endorse the Communique.



Media Releases

To view the Media releases for both before and after the Summit, CLICK HERE.



Video Library

To view the above sessions from this year's Summit, CLICK HERE.



Speaker Sessions

A range of industry leading Speakers joined us to discuss key inroads in combatting Rare Disease. A selection of key Speaker presentations are available for download below.


Opening: 'Summit Opening'


Presentations for Download



Session 1: 'Insights on Progressing a National Rare Diseases Plan for Australia'


Presentations for Download



Session 2: 'Models for Data Collection and Use. How to Better Meet Rare Disease Patient Needs.'


Presentations for Download



Session 3: 'Models of Care to Better Meet Patient Needs'


Presentations for Download



Session 4: 'Equitable Access to Diagnostics, Therapeutics and Services'


Presentations for Download




Following the insightful presentations by our Speakers, delegates participated in a series of intensive workshop engagements as a means of sharing experiences and developing knowledge.


Presentations for Download