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Helpful Information

Rare Voices Australia strives to provide up to date information that is both helpful and informative for people living with a rare disease, their familes and carers. Rare Voices Australia does not receive any direct Government funding to provide professional services to patients living with a are disease including counselling, help setting up a support group, finding another rare disease support organisation, finding professional support and services in the local jurisdiction.  There are support services available specific to genetic and rare diseases that are funded by State Governments in Victoria, New South Wales and Westen Australia.

New South Wales

Genetic Alliance Australia
(formerly - Association of Genetic Support of Australasia, AGSA)

Address:        C/Garvan Institute of Medical Research, Level 6, Rm 6.39, 384 Victoria Road, Darlinghurst NSW 2010

Website:        http://www.geneticalliance.org.au/
email:               info@geneticalliance.org.au  
Phone:             +61 02 9295 8359



Victoria

GSNV - Genetic Support Network of Victoria

Address:          Murdoch Children’s Research Institute, Royal Children's Hospital
                              50 Flemington Road, Parkville, Victoria 3052

Phone:              +61 03 8341 6315
Email:                info@gsnv.org.au
Website:         http://www.gsnv.org.au/

 


Western Australia 

GaRDN - Genetic and Rare Disease Netwo

Address:          Suite 7, Oasis Lotteries House, 37 Hampden Road
                              NEDLANDS WA 6009
Phone:             +61 08 9485 8999
Email:               hello@gardn.org.au
Website:        http://www.geneticandrarediseasenetwork.org.au