Contact Rare Voices Australia
Rare Voices Australia is managed by part time paid staff. The best form of contact is via email. For urgent medical matters please refer to the Emergency department of your local hospital.
Postal: PO Box 4419, Castlecrag, New South Wales, 2068
Phone: 0497 003 104
Office hours: Monday to Friday 9.00am - 5.00pm (EST)
Please note Rare Voices Australia does not receive direct Government funding to provide the service to the rare disease community. RVA relies on donations, grants and fundraising efforts to advocate and raise awareness of the rare disease community. For specific Rare Disease information or assistance or to talk with Genetic services in NSW, WA or VIC please click here.
For information on Patient Support please click here.