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Living with a rare disease

The Australian Experience of Living with a Rare Disease

Download a collection of personal stories prepared by Rare Voices Australia. Click on the image below to download in PDF format.



If you would like to purchase a copy of this booklet in glossy print, please email: accounts@rarevoices.com.au or phone: +61 02 9967 5884.  Cost is $15.00 AUD per booklet (includes postage and handling within Australia).  
All proceeds go to supporting Rare Disease projects.


Tell Your Personal Stories

In this section you can find out more about what it is like to live with, or care for someone with a rare disease. The stories featured are real experiences and will give you an insight into some of the issues these patients face on a daily basis.

RVA needs your help to build this page!  If you would like to contribute your personal story please contact info@rarevoices.com.au