Rare Voices Australia (RVA) welcomes the announcement of the Newborn Bloodspot Screening National Policy Framework. Over the last 15 months, RVA has strongly called for the endorsement of the Framework by the Australian Health Ministers’ Advisory Council (AHMAC). RVA is very pleased that this has now eventuated and particularly would like to congratulate the Newborn Bloodspot Screening Working Group, chaired by Professor Craig White. This Framework was developed from their 18 months of intense work and significant stakeholder engagement.
You can read RVA's full response here.