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A UNIFIED VOICE

FOR ALL AUSTRALIANS LIVING WITH A RARE DISEASE

RVA MISSION

Rare Voices Australia, the national alliance of people living with a rare disease, will provide a unified voice to improve the lives of all Australians affected by rare diseases
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Latest News

Megan Fookes was overwhelmed when she was awarded the title of OAM for her work in the rare disease community of Australia.
Show your support for Rare Disease Day and help raise awareness by joining the "Hand Prints Across Australia" campaign.

Upcoming events

The Forgotten Ones photographic project focuses on capturing young Australian individuals that live with a sibling born with a Rare Disease.
May 13, 2015 6:30 PM
May 13, 2015 9:00 PM
Customs House
31 Alfred Street
Sydney, NSW, 2000
Rebecca Novacek
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