Dialog Box

Loading...

A UNIFIED VOICE

FOR ALL AUSTRALIANS LIVING WITH A RARE DISEASE


Rare Voices Australia (RVA) is a national, not-for-profit organisation established in 2012 with a vision to be ‘the unified voice for ALL Australians living with a rare disease’. RVA is Australia’s national alliance advocating for those who live with a rare disease. RVA provides a strong common voice to promote health policy and a healthcare system that works for those with rare diseases.
Learn more here

Latest News

The McKell Institute have published a report on "Funding Rare Disease Therapies in Australia - Ensuring Equitable Access to Health Care for all Australians", November 2014.
Rare Voices Australia celebrates the launch of Parliamentary Friends of Rare Diseases - opened by Hon. Michael Kirby, AC CMG.

Upcoming events

Rare Voices Australia is launching Parliamentary Friends of Rare Diseases - a bipartisan event. We are inviting people affected by a rare disease who are prepared to contact their local Federal MP.
November 24, 2014 5:30 PM
November 24, 2014 7:30 PM
Mural Hall
Parliament House
Canberra, ACT, 2600
Rebecca Novacek
Register

Social Feeds