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A UNIFIED VOICE

FOR ALL AUSTRALIANS LIVING WITH A RARE DISEASE


Rare Voices Australia (RVA) is a national, not-for-profit organisation established in 2012 with a vision to be ‘the unified voice for ALL Australians living with a rare disease’. RVA is Australia’s national alliance advocating for those who live with a rare disease. RVA provides a strong common voice to promote health policy and a healthcare system that works for those with rare diseases.
Learn more here

Latest News

The McKell Institute have published a report on "Funding Rare Disease Therapies in Australia - Ensuring Equitable Access to Health Care for all Australians", November 2014.
Rare Voices Australia celebrates the launch of Parliamentary Friends of Rare Diseases - opened by Hon. Michael Kirby, AC CMG.

Upcoming events

A National Plan for Rare Diseases - Driving Collaboration, Driving Action
March 27, 2015 9:00 AM
March 28, 2015 4:00 PM
16 The Esplanade
Novotel Melbourne St Kilda
St Kilda, VIC, 3182
Joanne Crestani
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