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A UNIFIED VOICE

FOR ALL AUSTRALIANS LIVING WITH A RARE DISEASE


Rare Voices Australia (RVA) is a national, not-for-profit organisation established in 2012 with a vision to be ‘the unified voice for ALL Australians living with a rare disease’. RVA is Australia’s national alliance advocating for those who live with a rare disease. RVA provides a strong common voice to promote health policy and a healthcare system that works for those with rare diseases.
Learn more here

Latest News

Get the latest news from Rare Voices Australia and the rare diseases community.
You can participate in an Australia wide survey on the health care experiences of adults living with a rare disease in Australia, between 21 July and 1 September 2014.
Latest News received from the Federal Department of Health regarding the Post Market Review of the Life Saving Drugs Program (LSDP).

Upcoming events

Rare Voices Australia is launching Parliamentary Friends of Rare Diseases - a bipartisan event. We are inviting people affected by a rare disease who are prepared to contact their local Federal MP.
November 24, 2014 5:30 PM
November 24, 2014 7:30 PM
Mural Hall
Parliament House
Canberra, ACT, 2600
Rebecca Novacek
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