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9 April 2014
The Australian Government will review the Life Saving Drugs Programme - a move aimed at ensuring that Australians with very rare conditions continue to have subsidised access to much-needed, expensive medicines.
8 April 2014
Rare Voice Australia (RVA) has welcomed a new collaboration between the TGA and the European Medicines Agency that will see them share assessment reports for marketing authorisations of orphan medicines.
7 April 2014
PHARMA IN FOCUS: Efforts to draw attention to rare diseases are gathering pace, with more experts calling for a national plan after a study showed the prevalence of rare lung diseases for the first time.