Dialog Box

24 April 2014
“Every voice has a right to be heard by our leaders. The voices of people with rare diseases are no exception. ....... We should respond. " RVA founding patron the Hon Michael Kirby AC, CMG
9 April 2014
The Australian Government will review the Life Saving Drugs Programme - a move aimed at ensuring that Australians with very rare conditions continue to have subsidised access to much-needed, expensive medicines.
8 April 2014
Rare Voice Australia (RVA) has welcomed a new collaboration between the TGA and the European Medicines Agency that will see them share assessment reports for marketing authorisations of orphan medicines.