Rare Voices Australia (RVA) is a national, not-for-profit organisation established in 2012 with a vision to be ‘the unified voice for ALL Australians living with a rare disease’.
RVA is Australia’s national alliance advocating for those who live with a rare disease. RVA provides a strong common voice to promote health policy and a healthcare system
that works for those with rare diseases.
RVA works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare diseases in Australia. RVA are the unified
voice of 1.2 million plus people affected by rare diseases throughout Australia (6–8% of the population), and 70 million globally.
t. +61 2 9967 5884
p. PO Box 4419
New South Wales 2068