uniting AUSTRALIANS LIVING WITH RARE DISEASE
Rare Voices Australia (RVA) is Australia’s peak body for rare disease, advocating for Australians living with rare disease. We provide a strong, common voice to advocate for health policy and a healthcare system that works for people living with rare disease. Our patient-centred focus sees RVA working with key stakeholders including patients, key peak bodies, governments, researchers, clinicians and industry to promote rare disease, diagnosis, access to treatments, data collection, coordinated care, access to services and coordinated research.
By working with our RVA partners and the Australian community in the advocacy space, we fight for an Australia that is Fair for Rare.