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A UNIFIED VOICE

FOR ALL AUSTRALIANS LIVING WITH A RARE DISEASE


Rare Voices Australia (RVA) is a national, not-for-profit organisation established in 2012 with a vision to be ‘the unified voice for ALL Australians living with a rare disease’. RVA is Australia’s national alliance advocating for those who live with a rare disease. RVA provides a strong common voice to promote health policy and a healthcare system that works for those with rare diseases.
Learn more here

Latest News

Great news for people living with undiagnosed rare diseases in Victoria. Premier Daniel Andrews MP has provided $25 million for state-wide genomic sequencing program.
Rare Voices Australia was proud to host "The Forgotten Ones" photographic exhibition, opened by NSW Premier Mike Baird at Sydney Custom's House on 13th May 2015.

Upcoming events

The Forgotten Ones photographic project focuses on capturing young Australian individuals that live with a sibling born with a Rare Disease.
May 13, 2015 6:30 PM
May 13, 2015 9:00 PM
Customs House
31 Alfred Street
Sydney, NSW, 2000
Rebecca Novacek
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